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South African Bone Marrow Registry

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Home » Terms & Conditions

Terms & Conditions

By using the website, you agree to be bound by the Website Terms and Conditions. All terms and conditions are material. Please review them carefully before proceeding. The Website Terms and Conditions apply to the website in its entirety including all services offered by or through the website.

COPYRIGHT NOTICE

The contents of this website (including without limitation all articles, statements, text, images, logos, and design) are ©2021 South African Bone Marrow Registry (SABMR). All rights reserved.

Definitions

    • “IP address” means a unique address that identifies a device on the Internet or a local network.
    • “Personal information” has the meaning assigned to it in the Protection of Personal Information Act (Act 4 of 2013), and “information” has a similar meaning unless the context requires otherwise, and includes any information that identifies or relates specifically to you such as your name, age, identity number, contact details, gender, organisation details, qualifications and information you use to log onto the website.
    • “Organisation” means the South African Bone Marrow Registry (SABMR), J57 Old Outpatients Building, Groote Schuur Hospital, Main Road, Observatory, Cape Town.
    • “Traffic data” means any data processed for the purpose of conveyance of a communication on an electronic communications network in respect of that communication and includes data relating to the routing, duration or time of a communication.
    • “Web browser” means an application used to access and view this website such as Internet Explorer, Google Chrome and Safari.
    • “Website” means the internet website with the address sabmr.co.za or any website with a URL that is validly registered to the organisation.
    • “You” / “your” means the user of the website and the services offered by the organisation on or through the website.

Purpose of the Website

The main purpose of the website is to provide relevant information about the SABMR to potential donors, recipients, medical professionals and to the public at large.

Conditions of Access and Use

    • To avoid any confusion, you agree that the Website Terms and Conditions apply to your use of the website, any third-party website licensed to the organisation and any information accessed via the website.
    • If you use the website, you must keep your access details (including your username and password if required) confidential and not allow other people to use them. You accept full responsibility for all activities that occur under your access details or password and accept responsibility for sharing your user name and password. Any use of your access details shall be regarded as if you were the person using such information.
    • Materials from the website may be copied and distributed on a limited basis for non-commercial purposes only, provided that any material copied remains intact and that all copies include the following notice in a clearly visible position: ‘Copyright © 2021 South African Bone Marrow Registry (SABMR). All rights reserved.’ These materials are for personal use only. Any copying or redistribution for commercial purposes or for compensation of any kind requires prior written permission from the organisation.
    • By using the website, you guarantee that you will not and you will not allow third parties on your behalf to
      • make and distribute copies of the website;
      • attempt to copy, reproduce, alter, modify, reverse engineer, disassemble, decompile, transfer, exchange or translate the website; or
      • create derivative works of the website of any kind whatsoever.
    • You acknowledge that the terms of the agreement with your Internet provider will continue to apply when using the website. As a result, you may be charged by the Internet provider for access to network connection services for the duration of the connection while accessing the website or any such third-party charges as may arise. You accept responsibility for any such charges that arise.
    • If you are not the payer of the device being used to access the website, you will be assumed to have received permission from the payer for accessing and using the website.

Data Protection

    • The website contains confidential information, which is the property of the organisation and/or its data subjects and/or its business partners. Unauthorised disclosure and/or use of this information may incur civil or criminal liability.
    • Any of your personal information available on the website and which you supply to the organisation when using the website will be used by the organisation in accordance with its Privacy Policy and subject to legislation.
    • You guarantee that all information provided by you on or via the website is true, accurate, current and correct and you undertake to update the information as and when required.
    • All information that you provide to the organisation may be stored electronically and with third parties, which parties are bound by strict levels of confidentiality. These electronic records shall be proof of the information unless you can prove otherwise.
    • The organisation takes all reasonable steps to protect your personal information and maintain confidentiality, including by making use of encryption technology. However, the organisation cannot guarantee the security or integrity of any information you transmit to it online and you agree that you do so at your own risk.

Intellectual Property

    • All trademarks, copyright, database and other intellectual property rights of any nature in the website together with the underlying software code as well as any content made available on the website (e.g. text, graphics, logos, images, etc.) are owned either directly by the organisation or by the organisation’s licensors unless expressly stated otherwise.
    • You do not obtain any trademark, copyright, database or any other intellectual property right of any nature or licence by using the website.
    • You are not granted any license or right to use any trademark without the organisation’s prior written permission and/or that of any third party.

Breach

If you breach the Website Terms and Conditions, the organisation shall have the right to claim damages of whatsoever nature from you, including special, incidental, consequential or indirect damages. In addition, the organisation shall have the right to claim loss of profits and loss of business and to recover all legal costs on a scale as between attorney and own client from you.

Termination

    • The organisation may in its sole discretion terminate your use of the website at any time by giving notice of termination to you, where this is possible.
    • You agree that the following actions shall constitute material breaches of the Website Terms and Conditions that shall result in the termination of your access to the website, if possible:
      • signing in as, or pretending to be another person;
      • transmitting material that violates, or could violate, the intellectual property rights or the privacy of others;
      • using interactive services in a way that is intended to harm, or could result in harm to you or to other users of the website; or
      • gathering information about others without obtaining prior written consent.
    • Upon termination of use as contemplated in this clause 7, the rights granted to you by the Website Terms and Conditions shall terminate.

Disclaimers and Limitation of Liability

    • The organisation tries to ensure that the most sophisticated technology protects the information on the website. However, the organisation cannot be held responsible for any consequences that may result from the unlawful breach of copyright or unlawful dissemination of information by third parties copying information off the website. If you suspect a breach or where a breach may have taken place and this comes to your knowledge, please contact the organisation or the webmaster as soon as possible so that the problem can be addressed.
    • The website and all information, content, tools and materials are provided by the organisation “as is” and on an “as available” basis without warranty of any kind.
    • The organisation does not guarantee the operation of the website or the information content, tools or materials on the website.
    • While the organisation makes every effort to ensure that the content and information on the website is complete, accurate and up-to-date, it makes no guarantee about the suitability of the products and services and provide no representation or warranty, express or implied, regarding the accuracy, correctness and completeness of information contained on the website.
    • The organisation does not guarantee that the website, information, content, tools or materials included on the website, the organisation’s servers or any electronic communications sent by it are free from viruses or other harmful components.
    • The views and opinions expressed on this website, links or attachments hereto do not necessarily reflect the views and/or opinions of the organisation. Regardless of the vast professional knowledge and scientific expertise in the field of Matched Unrelated Bone Marrow Transplantation and Donor Recruitment that the organisation possesses, it cannot inspect all information to determine the truthfulness, accuracy, reliability, completeness or relevance thereof.
    • Although the organisation is fully committed to providing you with the best possible service, it shall not be responsible for:
      • any interrupted, delayed or failed transmission, storage or delivery of information due to a power failure, equipment or software malfunction, natural disasters, fire, labour unrest, epidemics, pandemics, or any other cause beyond the reasonable control of the organisation, or
      • any inaccurate, incomplete or inadequate information supplied by you and obtainable from the website.
    • The website and all of its component elements, including text, graphics, images, hyperlinks and other materials supplied by third parties, are for general educational purposes only and do not take the place of professional medical advice. To the extent that clinical information may be provided on the website, it is based on best practice and/or current research, recommendations and guidelines, which may change from time to time. The information provided does not replace the advice of a registered health care practitioner. You should not discontinue any treatment you may be receiving on the basis of information reflected on this website without first consulting your treating practitioner and you should seek professional advice should any symptoms you may be experiencing persist.
    • You agree to use the website at your own risk.
    • The organisation, its directors / partners, employees, contractors and website contributors shall not be liable to you or any other person or entity for, and you agree to indemnify them against, any claim or damages of any kind, including for direct, indirect, special, incidental, punitive and/or consequential damages as well as loss of profit or the like whether or not in the contemplation of the parties, whether based on breach of contract, delict (including negligence), product liability or otherwise, arising from –
      • your use of the website or from any information, content, tools or materials included on or otherwise made available to you through the website, including any damage or alteration to your equipment, including but not limited to computer equipment, handheld devices or mobile telephones;
      • for any decision taken or acted upon as a result of reliance on the information or philosophies contained or expressed on the website;
      • any of the events described in this clause 8;
      • your actions or omissions that result in a breach of the Website Terms and Conditions;
      • any links to other websites from the website. You also acknowledge that the organisation cannot control the content of or the products and services offered on those websites; and/or
      • a denial of access to the website should the organisation have reason to believe that you are conducting activities that are illegal, abusive, would affect the integrity of the website or place the organisation in disrepute.

Website Analytics

You may visit the website without providing any personal information. The website servers will in such instances collect the IP address used by the data subject to access the website, but not the e-mail address or any other personal identifiable information. The information on IP addresses is aggregated to measure the number of visits, the average time spent at the website, pages viewed, etc. The organisation analyses non-identifiable traffic data to improve its services, via a third-party programme, Google Analytics.

The organisation may collect, hold and use statistical information about website visits to help it improve the website. Such information includes –

  • your IP address;
  • the research terms you used;
  • the pages accessed on the website and the links visitors clicked on;
  • the date and time you visited the website;
  • the referring website (if any) through which you clicked through to our website; and
  • the type of web browser you use.

The traffic data is aggregated and is not personally identifiable. Our website analysis will respect any “does not track” setting you may have set on your web browser.

Cookies

The organisation uses industry-wide technologies such as ‘cookies’ to collect information about the use of the website, your preferences and past browsing history. ‘Cookies’ refer to information that is sent from the website to your hard drive, where it is saved. This will allow the organisation to improve its services and your experience when you use the website again. The cookies do not collect any personal information about data subjects. The information obtained will be shared with persons or entities to the extent necessary for them to administer and improve the website on our behalf.

Jurisdiction

The laws of the Republic of South Africa shall govern these Website Terms and Conditions.

Amendments to the Website Terms and Conditions

The organisation may in its sole discretion amend the Website Terms and Conditions from time to time without prior notice. The latest Website Terms and Conditions available on the website shall at all times take precedence over any other version of these Terms. It is your responsibility to make sure you are satisfied with any changes before continuing to use the website.

Further Information

If you have questions about these Website Terms and Conditions, please contact the Information Officer / webmaster at admin@sabmr.co.za.



Is your child on a transplant journey?

In 2020, the SABMR teamed up with 11-year-old transplant recipient Rachel Ancer and her family to produce Rachel’s Second Chance, an illustrated children’s book and educational booklet on bone marrow transplants. With hope, humour, and insight, including key elements of the transplant process and advice on what to expect during a transplant journey, Rachel’s Second Chance is a resource for the whole family.

Available for sale for R79.95 (e-book for R39.95).

BUY NOWBUY NOW (ebook)

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It is the last day for you to participate in our s It is the last day for you to participate in our survey. If you would like to be entered into the draw for the R2 500 cash prize. Snap the QR code on the poster or follow the link in our bio
July is World Cord Blood Awareness Month and we're July is World Cord Blood Awareness Month and we're spreading awareness with our partners @next_biosciences 

Why is umbilical cord blood important you ask? Umbilical cord blood contains stem cells that can be used in the regeneration of bone marrow and can replace diseased or damaged cells with new healthy cells. Bone marrow stem cells rebuilds a person’s blood and immune system. 
Click on the link in our bio for more information on stem cells.
https://www.youtube.com/watch?v=6pjcDWVxrNQ 
#communitybank #stemcellbanking #cordblood #cordbloodawareness #bonemarrow
Six-year-old, Fanele Memela, wants nothing more th Six-year-old, Fanele Memela, wants nothing more than to spend as much time with her baby brother as she can. Unfortunately due to her diagnosis of Acute Myeloid Leukaemia, she spends many days in hospital undergoing chemotherapy as she awaits a bone marrow stem cell donor match. You can help by donating towards the cost of the search for her donor at the link in our bio
Diagnosed with Fanconi Anaemia at the age of only Diagnosed with Fanconi Anaemia at the age of only six months, Kiara Rossouw (18) needs our help to find a matching donor for a bone marrow stem cell transplant. Her family has already suffered so much having lost her younger brother in 2019 to the same genetic disease. We will be hosting a drive at the APK Church in Rustenburg on the 9th of July. Please come and sign up to give Kiara and her family a second chance!
As a toddler with leukaemia facing a slim (10%) ch As a toddler with leukaemia facing a slim (10%) chance of surviving, Rebecca Stinger needed a miracle. That miracle came in the form of Zyta Foxcroft, who donated bone marrow stem cells to save Rebecca’s life. Now 18 and 14 years cancer-free, Rebecca is embracing life! Read at the link in our bio
Thank you to @westville_senior_primary for hostin Thank you to @westville_senior_primary  for hosting a drive for one of their own today. Siyamthanda Nxasana is in urgent need of a bone marrow transplant and awaiting her perfect match. Students, community members, and teachers came out in their droves this morning to sign up and show their support for this cause. It was great meeting all of you and inspirational to see how communities pull together in a time of need. #SwabtoSave
If you have not yet done so, please answer our sho If you have not yet done so, please answer our short survey about bone marrow stem cell donation and you could win R2 500 in cash! Follow the link in our bio or scan the QR code in the image.
Thank you to Varsity College Durban North for allo Thank you to Varsity College Durban North for allowing us to host a drive at your campus this week. A big shout out to each and every student who came to learn more about bone marrow stem cell donation and signed up as donors to help us save lives! 💙
Happy Youth Day South Africa. As the saying goes: Happy Youth Day South Africa. 
As the saying goes: "Our children are our future", but often, many children's lives are cut short, because of a lack of bone marrow stem cell donors. Give children with blood disorders a future by signing up as a donor at www.sabmr.co.za
Did you know that the odds of finding a bone marro Did you know that the odds of finding a bone marrow stem cell donor match is like finding a needle in a haystack? There's only 1 in 100 000 chance that you can be someone's match -  that's why we are continuously recruiting to give someone a second chance at life.  Can we count on you to be the ONE? Sign up at www.sabmr.co.za
June is Youth Month and we're celebrating by givin June is Youth Month and we're celebrating by giving SA youth the chance to be part of positive change. We're recruiting volunteers across the country to help us save lives through our 50 Squad initiative - are you game to become a hero? 
See the details on poster #swabtosave #YouthMonth
Hi everyone! @themba_tee27 here, sharing the beau Hi everyone! @themba_tee27  here, sharing the beautiful story of a brave new mother who, just six months after giving birth to her first child, took the chance to save someone’s life. Brenda Masuku became the SABMR’s first black donor in 2003 – and just a few years later got the chance to meet the little girl for whom she donated. Read more at the link in our bio
Our POV (Point of View) we really like connecting Our POV (Point of View) we really like connecting with you. Follow, like, chat, share and comment on our social media channels. Find us on Instagram and Twitter @sabonemreg or @sabonemarrow on Tik Tok
“Alone we can do so little, together we can do s “Alone we can do so little, together we can do so much.”- Helen Keller
 
It is only through collaboration with likeminded partners that we’re able to continue to save lives. We’d like to congratulate @intercare_  on their 20th year anniversary. Here’s wishing you many more decades of growth and sustainability in your quest to make people feel better”.
Did you know - signing up as a bone marrow stem ce Did you know - signing up as a bone marrow stem cell donor and the registration process is absolutely free? With the rising cost of living, there's not  much free anything these days!  So, what are you waiting for? If you're between the ages of 16 and 45, be a good Samaritan and sign up to give someone a second chance at life.
STOP SCROLLING Fanele needs your help! At only 6 y STOP SCROLLING Fanele needs your help! At only 6 years old, this Durbanite is relying on the kindness of a stranger to give her a second chance at life as none of her family members are a viable bone marrow stem cell match. Could you be the one? Sign up as a donor at www.sabmr.co.za  or make a financial donation that will help ramp up donor recruitment efforts to save her life her at the @backabuddy  link in our bio
Answer our short survey about bone marrow stem cel Answer our short survey about bone marrow stem cell donation and you could win 
R2 500 in cash! Follow the link in our bio to participate
Did you know that you can sign up as a volunteer f Did you know that you can sign up as a volunteer for the SABMR? Has it always been your dream to make a difference in your community? If you’re between the ages of 16 and 35, and would like to develop your marketing skills and gain workplace experience, sign up to become a volunteer bone marrow donor recruiter. See details on poster and feel free to contact us if you have any questions.
NEW BLOG ALERT! Hi Readers, thanks for joining me NEW BLOG ALERT!

Hi Readers, thanks for joining me! Today I tell the harrowing story of the baby boy whose first year of life would be a greater medical challenge than most of us face in a lifetime.  At just six months old, Ian Zwanepoel was diagnosed with a rare genetic disease. Then he became the youngest child for whom the SABMR had ever facilitated a bone marrow transplant. Read his story at the link in our bio! @themba_tee27
Three cheers for the majestic Mpumalanga! Thank yo Three cheers for the majestic Mpumalanga! Thank you for welcoming us with open arms and giving us the chance to recruit donors at not one, but two drives this week. We were at Penryn College and the mall today and the support was overwhelming. Thank you for helping us save lives 💙
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